chemo Archives - Egg Donor Angels

Owen came home and he’s put on weight…

On Sunday the 7th of January, a very hot day in Penrith, the Dr’s approved us to bring Owen home, yayyyyy

They loved the written note on Owen’s crib asking if he could, thanks to one of the fabulous NICU nurses for writing it xox

We were so happy to take him home but he’s still so tiny and hardly fits in his capsule, we’ve got the straps on the smallest setting! Of course nervous as well.

It was nice not to be going to the hospital several times a day but then came the 3 hourly feeds 🙂 all worth it though xox

We had to go back a few times every couple of days to get him weighed and checked and each time he put on weight, though the first weigh in only a little but he’s now 2.10kg or probably more as that was at the last weigh in.

Liam is great with him, really gentle most of the time and gives him kisses, too cute! Though he gets boisterous and not so gentle with Owen or with us.. but he’s very good and at night when we put him to bed he blows Owen a kiss goodnight in his bassinet… he melts my heart xox

We’ve not done much with him home, I’m still sore and exhausted and my blood pressure is still playing up a bit, more to do with now not being pregnant and getting the medications right and in line with my bp coming down and righting itself.. some huge headaches with this ride but hopefully the high bp was pregnancy related and will right itself soon.

Owen is growing and we did introduce him to Shane’s Nan the other day, she’s 98 and doing well considering and she got to cuddle him lots.

The great team that helped us to get our two boys xox

(photo of Dr Matabese from Cape Fertility to come :))

Owen and Dr Merchant (our local GP, he’s amazing)

Sarah and me (Sarah was our reg Ob for Liam and delivered him for us and now works for Dr Pardey, she’s gorgeous xox)

and here’s the gorgeous Maree, she was our reg Ob with Liam’s pregnancy for the most part and she with Dr Pardey delivered Owen, and is also amazing xox

Cheryl at Balance Medical, did all my blood tests and has been along for the ride xox

The lovely Simone and Cheryl at Balance xox

Well I think that’s our family complete for us, though we might consider adoption in a few years or maybe fostering… I don’t think i can put any of us or our team through another pregnancy, though I did give Dr Pardey, Maree and Sarah a scare by saying I wanted to be a surrogate, and yes I’d love to do this but again I can’t put my family through another complicated pregnancy. Whilst another pregnancy might be much easier like it was with Liam there’s no guarantee so that’s it for us xox

We are considering on-donating our embryo’s in Cape Town at some point, we just need to get through the next year or so and we’ll start this process xox

So as soon as I finish breast feeding Owen, I’ll be back to see the lovely Prof Kefford to do a check up and probably start Tamoxifen for a few years to keep that big C away…

Gosh I can’t believe we’ve done it, phew and yayyyyy it’s a bit surreal still and after so many years and so much heartache it does seem like a dream.

Now to focus on our boys and helping others achieve this…. thanks again for everyone’s support and help along the way and we hope we can continue to help others to achieve their dream.

Lots of love Dianne, Shane, Liam and Owen xoxox

After holding our breath for almost 9 months, here he is finally, our Egg Donor Angel conceived little boy is here xox

Hey everyone, sorry it’s taken me so long to post our news and updates 🙁 Life has been a wee bit hectic lately and several times I’ve tried to do this post and thanks to my computer crashing have lost what I had written…. but I’m back and ready to make this happen lol.. xox

So, let me introduce Liam James Heron, our little miracle boy xox, born Friday 26th February at 8.57am at Nepean Hospital weighing 2.93 kilos and measuring 47.5cm.. he’s now 5.44kg and 59.5cm.. and growing lol. Thanks to the awesome and divine team at the University of Sydney Nepean clinic, that’s Maree, Sarah and yes you too Tracy, you all made our pregnancy and the birth so much more special and we can’t wait to go again and have you looking after us.. after that we hope to catch up and stay friends xox

So after a crazy plus year, losing Mum, dealing with settling her affairs and a family member causing major issues and conflict, dealing with our clinic not freezing our embryo’s properly and losing all 11 of them, trying another donor cycle with the devastation of it not working, making the decision to go to South Africa for our egg donor angel and then to find that our donor didn’t respond well and we had one little good quality embryo but it’s ok, that embie was Liam and we are soooo happy he’s here.

We can’t believe he is and whilst every parent has those “first” moments and “wow” moments, ours are just huge and overwhelming..

The pregnancy was good considering my history, I remember my first appointment with Maree, it was hours going through my history lol and then chatting heaps to Tracy about my passion with Egg Donor Angels and just infertility etc. And our first appointment with Sarah this year where we spoke to her about going back to South Africa for a sibling for Liam in November.. she was amazing and said “I understand why” and supported us.. as crazy as it seems..

So you might ask why when we have our little boy.. well we are older parents and we won’t be around for as long as some parents for Liam, our families aren’t big and aren’t getting any younger lol like all of us.. we have amazing friends whose children are going to be like family to Liam and of course my beautiful and amazing cousin’s children will be fabulous cousins to him and guide him along his paths as well.. but we both always wanted more than one but we also want Liam to have a little brother or sister that he has by his side for the rest of his and their lives.. when we aren’t there xox

So we go back to Cape Town in November to go again. Our donor has done another cycle for us… we were discussing doing another one with the donor agency and with the IVF clinic when they contacted us and said that the recipients had pulled out of a cycle with her and would we like to use Shane’s frozen sample/sperm and do the cycle.. we knew we wanted to go again so we thought oh well lets do it now.. so we have 1 fabulous embie, 2 really good ones and 2 not so good in the freezer waiting for us and we feel confident that we will have another successful pregnancy from this.

So my pregnancy, I loved being pregnant even with the high blood pressure scares, the terrible reflux (I already have awful re-flux from chemo but this made it much much worse if possible lol), the swelling and the pain in all my scars and my side from the breast cancer etc. .. but it was all worth it, even the last month where it was hard to sleep and do anything lol…….

So our wonderful team booked us in for a C section on the 26th and as that day rolled around we felt nervous but also surreal that it was real and happening.. I felt sad that he was not going to be safe and warm in my belly but sooo excited to meet him as well.. everything went well, Tracy looked after Shane wonderfully and me prior to delivery and then Liam and she was the first one other than the gorgeous Sarah that delivered him to hold him… and check him out.. it was a weird feeling not being able to feel or move my lower half, gosh I’ve always had empathy for invalids but I can sort of relate to it for a short time anyway.

We all got to cuddle him and have skin to skin time in recovery and then in our room and then Marleen (Shane’s dads partner) and Shane’s Mum came to the hospital and got to meet him as well. As I didn’t know if I would be able to breast feed, the midwives suggested we do a “line feed” for him.. basically using a syringe and a line and feeding him through the tube/line on my nipple.. it worked well and Shane and I managed to prepare and to it on our own and I even did it on my own own lol several times.. it was nice to know that I had that considering everything.. that was done on the breast that didn’t have the cancer in it but had a reduction as it was dare I say cheaper to have it reduced and get a smaller implant than get a larger implant in the cancerous breast.. our government doesn’t consider breast reconstruction after breast cancer necessary, apparently it’s elective.. but that’s another story and passion of mine to change xox

The hospital was great, Liam had some jaundice and had treatment, the worst part of it was the little eye mask he had to wear and he hated it.. but it was necessary.. we went home on the Monday night, Shane had to work that day.. and as we packed up and got into the car with Liam loaded up we had to stop and take a breath.. oh my we both said, he’s real and he’s hear and oh they are letting us out of here to look after him.. yikes.. lol.. but it was fine…

We went back a few days later for a check up and I asked them how to check to see if I had any breast milk, we hand expressed and as some milk came out we all cried for joy… so I am able to do a mix of bottle and breastfeeding to him.. which is great as I get that contact with closeness with him but Shane also gets to bottle feed him and have that closeness as well… we get the best of both worlds.. I’m so pleased as he would have gotten the colostrom as he was on my breast quite a bit with the line feeding and he’s getting nutrients from both options.. win win I say 🙂 xox

And yes I am exhausted, tired, sleep deprived and as I wander up the hallway at all hours of the night in my routine, put my pillows up, get the bib, get my feeding pillow, go the kitchen, prepare and heat up the bottle.. all I can say is oh wow he’s here.. Some nights I manage to unpack the dishwasher, sterilise his bottles and fill them with kettle/boiled water.. some nights, I post and comment on Egg Donor Angels Facebook groups and some nights I fall asleep holding the bottle feeding him.. and just cuddling him..

I’m trying to stay on top of Egg Donor Angels but some days are just filled with Liam and stuff.. though we have been out and about quite a bit, we got to catch up with one of my gorgeous donors from my site in the city, so Liam had his first train ride, we’ve been shopping and to lunch and dinner with friends, we’ve had lots of visitors including my self adopted Dad, friends and another wonderful donor from here as well to name a few.. we’ve been on a car club run in the XY and I’ve started walking with him and Scoutie the dog.. oh and I’ve joined the local new parents group.. and yep already mentioned Egg Donor Angels lol…

So now I’m going to put up lots of photos as I know you all want to see them and I hope to do more posts and especially on our next stage of our journey, the next little one.. yayyyy we can’t wait.. as nervous as we are.. and know we will be holding our breath again for the whole pregnancy.. it’s all worth it..

And maybe I’ll write a book about this whole journey and for awareness.. I’m thinking the title along the lines of “holding our breath waiting for our miracle egg donor baby” or something similar but definitely with “holding our breath”.. as the whole pregnancy, we just couldn’t get too excited as we knew we had to get to the end and see him before we could..

Oh and the name.. well we hadn’t really decided on any, it only took us 3 weeks to finally decide lol.. I think we just couldn’t make that decicsion till we met him and till we knew he was here safe and sound.. and then we were looking at an African name that meant “long awaited” but it wasn’t correct.. and then any African names we looked at were too hard to pronounce for us Aussies.. so we both liked Liam and James so that was it.. though if it’s a boy for the next one, and I keep saying it is, I actually already have a name, not one that we had for Liam, one I have chosen after he was named.. it’s a name from a TV series from my childhood and I always loved it.. just only thought of it recently.. if it’s a girl the next one well.. I had some names picked out years ago but sadly I’ve forgotten them.. but I’m sure 3 weeks after he/she is born we’ll decide lol again..

Thanks for all your support, love and just everything, to those still on the journey let me know what we can do to help you achieve this, to those that have helped us, thank you so much, we love you all xoxox

Dianne, Shane, Liam, Scout the dog, Sooty the Cat and the chickens xoxox

Liam tonka trucks 240316 (5) to use smaller

Liam tonka trucks 240316 (2) to use smaller

D&C all done, yayyyyy

Great news, my d&c has been done, my uterus is clear of all those nasty chemo drugs…. now need to see my reconstruction surgeon on Monday as I am still in lots of pain from the last surgery and I shouldn’t be, hopefully it’s just my body overwhelmed by all the breast cancer surgeries and treatments… 🙁

We are still working towards a late September embie/snow baby transfer…. now I’m getting excited, but a bit nervous as most of us know that it’s not an absolute…
Off to see my wonderful TCM & acupuncturist Kathryn Taylor tomorrow, have been seeing her for years and she’s fabulous, gosh she knows just about everything about infertility. She’s been away for a while so I’ve been seeing her locum but it will be fabulous to catch up with her tomorrow…

Would love to hear how you are going with your journey xoxox

So it’s been a while……sorry :(

Gosh I’m sorry it’s been a while since I have written anything, I hoped to do it regularly but a wee thing called breast cancer just got in my way.. plus all the usual day to day stuff 🙂 I hope to get back into it more soon…

Thank you to everyone for all your support and patience, I have tried where possible to approve ads really quickly and reply really quickly but there have been days where I have just been too sick to do it 🙁 and it’s also been very difficult to do it from a hospital bed.

It’s been a crazy 2 1/2 years, since my diagnosis, I have had a mastectomy, FEC90 chemo x 4 sessions every 3 weeks and that was crap (nausea, vomiting, exhaustion, mouth ulcers, lack of appetite, hair loss and much much more), I was admitted for a week plus to hospital for low white blood cell count and infections after this first chemo, then I had to have a port put in as my veins collapsed in my arm and they couldn’t get a vein for the chemo, I then had another chemo taxol weekly for 12 weeks and that too was crap 🙂 (absolute exhaustion to the point I couldn’t walk or move, I lost my toe nails and my finger nails went extremely brittle, I lost feeling in my toes and fingers and it’s still as bad today which potentially no fix in site.. and again much much more), then I did radiation every weekday for over 4 weeks and that gave me a lovely tan, well actually really really bad sunburn with blisters… I also started a therapy called Herceptin through the port for a year as I was HER positive, I then had my reconstruction and 5 weeks later was rushed to hospital with massive infections and pain and subsequently had to have the implant removed.. then about 4 weeks later the wounds opened up and I had two lovely holes in my side where I could see inside myself :)… so my specialist got me to have them dressed daily for weeks, then sent me to Prince of Wales hospital daily for hyperbaric oxygen treatment to see if that would heal them, that was fun from Faulconbridge in the Blue Mountains on the morning train to Central railway station then by bus to Randwick and back home again in the afternoon… when that wasn’t working after 12 weeks, they did a CT scan to find that I had Osteoradionecrosis, a rare condition where the radiation and infections had caused the tissue and skin and some of my ribs to die… so they I had to have a lat dorsi where they took skin, muscle and tissue from my lower back and pulled it through to my front to give that area circulation and skin to heal…. but wait there’s more 🙂 so then once that was healed I had the expander put in, another surgery, and then they inflated it slowly to stretch the skin out and then finally about 7 weeks ago I had the implant put in… so we are on the home stretch, yay!!

Sorry a boring lot of detail and I am sure I have forgotten lots of extra treatment and stuff…. but that’s the quick snapshot 🙂 of course there were weekly/daily specialist appointments, lots of pain and exhaustion and so much more…

So the great news for me is that my egg donor angel did another cycle whilst I was still going through treatment and we have 11 snow babies on ice waiting for us. I have just had full scans and yes am cancer free, yayyyyy, we are full steam ahead on doing a cycle and a transfer.

This Tuesday I have a d+c to clear my uterus of all those nasty chemo drugs and other chemicals… then my body will heal whilst we go away to Melbourne to visit family and once we return we will do our first transfer, sometime around the end of September.

It’s been a long, exhausting and emotional journey for us and I hope that our dreams will now become reality and this Christmas I can celebrate knowing that the next one, we will have our own family.

So what about you?? I have had lots of wonderful news whilst going through all of this of babies being born through couples meeting their egg donor angels through here and lots of couples and egg donor angels currently going through the process. Some sad news where the cycles haven’t worked or the couples have decided to not continue looking 🙁

I am soooooo very excited, every week this site is growing and more and more wonderful egg donor angels are placing ads or contacting couples offering to help, when I started there were so many of us looking and not many angels…. but now we are getting the word out there about egg donation, infertility we are getting many more successes., thank you to everyone for this and please keep spreading the word xox

I was in Springwood at my local shops the other day and typical me, found any opportunity to talk about egg donation and Egg Donor Angels and infertility, that I was chatting to a shop assistant and she said if she had know years ago after having her children, she would have donated her eggs…

But the most important message I had for her was to be aware of her daughters fertility and as they get into their thirties to get themselves checked out and if they aren’t ready yet or haven’t found the right one yet, freeze their eggs…

When we are young, we are told “don’t get pregnant”, “go on the pill”.

At school, we learn the basics of reproduction but no one teaches you about infertility and its conditions and how age affects it and how our fertility starts to decline after 35…. I am not saying all young women should get pregnant or have babies earlier, everyone is different and each person needs to do this when they are ready… but I want every girl/woman to totally understand how it all works, the issues and even the simple thing of how ovulation works…

Well that’s it from me…I would love to hear how you are going..

xoxox

The Big C!

There’s no easy way to start this post, so here goes… 4 weeks ago I was diagnosed with breast cancer. Now I have always said cancer scares me but just never thought it would be me. We had just said goodbye to a friend on the 27th January to cancer, she lived with us for over 3 months while renovating her house next door and then within two days of moving into her dream home, she was diagnosed with cancer. It was in her bones, her lungs and her breast and they didn’t know which was the primary and which was the secondary and which one to treat.. sadly she fought it for a while but her body was riddled, goodbye Nellie, you are missed…

We spent the last four months of 2011 doing our donor egg cycle and two transfers where sadly we miscarried. At the same time I had a really bad flu and had a some symptoms that I put down to the IVF drugs. I mentioned the scab on my nipple to my GP at the appointment I had with her re my flu and first miscarriage and she said to come back…. I went back in December about it and another issue and she looked at it, said “hhmmm, it’s probably the IVF drugs” and dismissed it. In the meantime I had googled “scab on nipple” and nothing came up, discharge, leaking etc came up but not this one.. so I thought it must be the hormones and trusted my GP. About 6 weeks ago I felt a huge lump in my breast and immediately booked into my GP to get it checked out. She said let’s do an ultrasound, I said what about a mammogram, she ummed and erred and then did the request. On the day of the scans, I knew they had found something being a Friday I had to wait all weekend, and of course when my GP was calling me Monday morning for an appointment to discuss the scans/results I knew that it was bad news. She said it appears to be DCIS, which was a better one to have…. sadly when we got to meet with our cancer surgeon 10 days later it was worse than that. It was high grade DCIS and invasive breast cancer and probably in my lymph nodes.

So here I am at 1am in the morning with only 9 hours before they operate and do a mastectomy on my right breast and remove all my lymph nodes. Sadly I say a fond farewell to a part of me that makes me I guess a woman but the learning I have is that it’s not me, what’s inside is me. I will start chemo in about 4 weeks for a few months or more where I will lose all my hair and probably grieve again, silly but it’s part of the process….. and then radiation most likely. So this speed hump is putting a pause on our dream of a family but it will not stop us from achieving that dream…

So I now have some work to do, hopefully get some sleep and then up at 6am to get ready for another journey in my life… will post again soon with an update…

Cherish your dreams and make them a reality… xox